Save the Dates!

Hoop-a-thon - April 10, 2010 - Upper Arlington High School

Celebration of Hope Casino Night - September 24, 2010 - Makoy Center

Huntington's Disease Parity Act of 2009

Nearly everyone affected by HD has trouble obtaining disability benefits. HDSA is leading a national campaign to address this problem, and we need your help! A bill in Congress, HR 678, The Huntington's Disease Parity Act of 2009 would revise the current Social Security Administration (SSA) guidelines for determining disability caused by HD. It would also eliminate the two-year waiting period to receive Medicare benefits after a disability determination is made by SSA. If enacted into law, HR 678 would significantly improve the lives of everyone affected by HD.

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Amaryllis Bulb Sale

Central Ohio Chapter is conducting its annual amaryllis bulb sale during October, November and December. From the $10 sale price, the chapter receives $5. Proceeds are used for care of HD patients and families, and for research for the cure.

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The Celebration of Hope - Casino Night

Thank you to all of the volunteers who helped our Celebration of Hope to be a HUGE Success! (Maureen Nash, Laura and Rob Cleveland, Melissa Pennington, Lori Mikesell, Lindsay Jack, Carey Karnemaat, Marie Miller, George Popovich, Laura Blazer, Jenny Smith, Michelle Ross and Phyllis Craig - this wonderful group helped get our silent auction items and worked the night of the event).

Many claimed that this was one of our best events ever! Great fun with the casino theme, good food, great silent and raffle times and parking was pretty easy too!

When all gets said and done I think we will have raised very close to $50,000 that will go to fund not only the Center of Excellence at OSU but also to vital research! That is SO exciting considering the current economic crunch! So I cannot thank you enough for your amazing and generous time, talent and donations! WITHOUT YOU WE WOULD NOT BE ABLE TO KEEP THE DOORS to the Center open OR THE LABS WORKING! SO PAT YOURSELF ON THE BACK FOR A JOB WELL DONE!

If any of you still want to make a donation and you have not done so, you can do so by sending in a check to the office: HDSA - 490 City Park Ave, Suite C - Columbus, Ohio 43215

[ Download 2009 Celebration of Hope Donor List ]

Support HDSA When You Buy Your Groceries

Help raise funds for Huntington's Disease Society of America by simply shopping at your local Kroger store.

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Monthly Support Group

December is our Holiday gift wrapping meeting. Our Chapter provides a gift to each HD patient in an area Nursing Home. Packaging, wrapping and distributing gifts to be delivered makes for a busy and festive evening. Holiday music and refreshments complete the gathering. Come join us on December 10th. For our January 14th meeting a speaker will provide information on Medicaid eligibility for home based and nursing home admission.

HDSA Shoot for a Cure

Thank you to everyone who came to shoot hoops and those who donated to HDSA towards the Shoot for a Cure "Hoop a Thon"! We are so proud to announce that we had one of our most successful Hoop days ever. We had more shooters than ever before and we were able to raise $28,919.85 for vital research to find a cure for HD! Thank you to everyone who came to shoot, volunteer and donated to fight HD!

Huntington's Disease Society of America (HDSA) Support Group helps families and caregivers as they Battle Huntington's Disease

The Central Ohio Chapter of HDSA hold support group meetings the second Thursday of every month from 7:00pm to 8:30pm at the Atonement Lutheran Church at 1621 Francisco Road, in the northwest Columbus area.

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HDSA's National Youth Alliance (NYA)

Connect with a great group of children and young adults who, with HDSA's encouragement and support, have made it their mission to ensure that theirs is the last generation with Huntington's Disease!

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National Research Roster for Huntington Disease Patients and Families

The National Research Roster for Huntington Disease Patients and Families was established in 1979 at Indiana University. The goal of the Roster is to help researchers learn more about Huntington disease. To accomplish this goal, the Roster has involved nearly 3,000 families in Huntington disease research.

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