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Central Ohio HDSA | Home
HD Family Education Day
Saturday, October 8, 2011 - 9 am - 3 pm
Atonement Lutheran Church - 1621 Francisco Road - Columbus, OH
Fifth Annual Huntington Disease Clinical Research Symposium
Saturday, November 5, 2011 - 8:00am - 12:30pm
Hyatt Regency Indianapolis
Team Hope 5K Walk/Run Results - Saturday, May 21, 2011
#6 - 23:52 - J. Slack
#8 - 24:50 - A. Bowersock
#15 - 26:19 - S. Mitchell
#7 - 27:52 - C. Gerstner
#1 - 28:18 - K. Howard
#17 - 29:43 - F. Fazakas
#5 - 30:15 - T. Theiss
#3 - 30:22 - R. Theiss
#26 - 30:37 - S. Nesteroad
#25 - 31:04 - A. Nesteroad
#2 - 31:20 - J. Howard
#16 - 35:30 - S. Gallagher
#4 - 36:48 - C. Hockenberry
#9 - 39:52 - J. Dossman
COHDSA Volunteers
We need new volunteers! If you are interested in volunteering your time, please be in contact with Rob Cleveland (cleveland.35@busfin.osu.edu / laura.j.clevland@gmail.com) or Brenda Francis (brendafrancis@ymail.com)
2011 HDSA BMW Sweepstakes
Grand Prize: 2011 BMW 328i Sedan or $25,000 Cash
Purchase Tickets Online | Official Rules
Amaryllis Bulb Sale
Central Ohio Chapter conducts an annual amaryllis bulb sale each year during October, November and December. From the $10 sale price, the chapter receives $5. Proceeds are used for care of HD patients and families, and for research for the cure. These bulbs are wonderful gifts. Adults love the beauty of the flower; children are fascinated at their growth.
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HDSA Unveils Equipment Exchange Board
Brand new this month, the HDSA Medical Equipment Exchange Board will offer a venue to post information about durable medical equipment for HD. The Equipment Board is designed to provide direct contact between individuals seeking medical equipment and those who no longer need it. To use the Equipment Board to post your used equipment, or to see what equipment is available, just go to the Living with HD section of the HDSA website, http://www.hdsa.org.
Workshops on Clinical Trials and Advocacy Available
HDSA has developed a 45 minute workshop that provides an overview of the clinical trials process, as well as a 30 minute presentation on legislative advocacy and the HD Parity Act. HDSA will provide a speaker and take home materials. If you are planning an educational event and want to include either workshop in your program, please contact Deb Lovecky, Director of Education, Programs and Services at dlovecky@hdsa.org.
Participate in the HDSA Clinical Trials Diplomats Program
HDSA Clinical Trials Diplomats are trained volunteers who believe that clinical trials are important to advancing research, treatments, and a cure for HD. Diplomats are usually people who have participated in a clinical or observational study, who are trained to provide information, and to answer questions about clinical trials in small group settings such as support group meetings, information days at HD clinics, and small educational events hosted by the HDSA Chapter, Affiliate, or Center of Excellence. To learn more about the Clinical Trials Diplomats program, or to become a Diplomat, please contact Deb Lovecky at Dlovecky@hdsa.org.
Huntington's Disease Parity Act of 2009
Nearly everyone affected by HD has trouble obtaining disability benefits. HDSA is leading a national campaign to address this problem, and we need your help! A bill in Congress, HR 678, The Huntington's Disease Parity Act of 2009 would revise the current Social Security Administration (SSA) guidelines for determining disability caused by HD. It would also eliminate the two-year waiting period to receive Medicare benefits after a disability determination is made by SSA. If enacted into law, HR 678 would significantly improve the lives of everyone affected by HD.
Support HDSA When You Buy Your Groceries
Help raise funds for Huntington's Disease Society of America by simply shopping at your local Kroger store.
HDSA's National Youth Alliance (NYA)
Connect with a great group of children and young adults who, with HDSA's encouragement and support, have made it their mission to ensure that theirs is the last generation with Huntington's Disease!
National Research Roster for Huntington Disease Patients and Families
The National Research Roster for Huntington Disease Patients and Families was established in 1979 at Indiana University. The goal of the Roster is to help researchers learn more about Huntington disease. To accomplish this goal, the Roster has involved nearly 3,000 families in Huntington disease research.
COHDSA Newsletter
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